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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 336
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Dear Barbara, no wonder you feel so ill with everything that has been happening, you must try to put yourself first for a while to try to get back on track. It's not surprising that you feel so low and I believe that Julie was right about it being so hard when you feel that you have no control over them. I have not felt well with the menopause a bit like having the life sucked out of you and depressed, nothing like your problems though. I hope you can find some improvement soon. Best of luck for the12th. Glenys.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hi barbara
you know that I am in the barb fan club for a start so NO APOLOGIES needed here ever. I dont know anything about menopause really- but I do know about being afraid about the drugs.
I am doing really well on the cimzia but I was bricking it when I started it.
I am having another zap today.
Much love to you
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Thank you all for the wonderful support, had another bad night of up-chucking, don't know what is worse the RA or this, still as long as they are not firing off together I can cope. Last night I was able to manage the sickness without having to call out a doctor, which is a first! Jenni, so pleased that the new drug is working, god knows you needed a well deserved break, it's onwards and upwards from now on for you my lovely  Chrissie, I will be keeping away from rubber gloves, my hands are a good excuse not to do any housework so my daughter and other half will just have to do it  Lorna, I've never been able to take the pill. It's not the heavy bleeding, that's the least of my worries, it's the sickness at the moment and not knowing what's causing it; I thought I'd blame it on the menopause. LOL. Melly, sorry to hear you're having a rough time, but WOW off to Africa in October, now that's something to look forward to Much love, Barbara XXXXX
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Dear Barbara, You are not allowed to say sorry on this forum! Sometimes we just don`t feel like posting, for whatever reason, but God knows, you have had more than your fair share of problems. If anyone is entitled to feel fed up, you are. Try to concentrate on your own health probs, and leave your brother out of it for now. You need all your reserves of energy for yourself right now. I never had sickness with the menopause, so can`t help with that, but good luck with whatever decision you make about the enbrel. Take care, Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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LOADS of love to you my dearest! I am so so sorry you've been sick again.
I will ring you tomorrow after the scan, although I may need a quick chat to calm my nerves!! LOL
ALL the children send big kisses and love and are preparing you a package!
Love always,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Barbara
I am so sorry that you are feeling so rotten. I hope that you get things sorted soon.
Thinking of you.
Jackie
xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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barbara-o wrote:I know I've not been around on the forum recently and feel that I have let people down, but to be honest with the way my physical and mental health has been over the past couple of months, I would not want to impose it upon anyone, and would not have been of any help; it was like I just wanted to switch off from everything going on in my life and the world. My brother is very ill with liver disease, and spent 8 weeks in hospital with a burst stomach ulcer, and has been told he will die if he does not change his lifestyle. I am very worried about him, but feel useless as I am unable to help practically with his care, which has been left to my poor 73 yr-old mother and my younger sister.
Over the past couple of months I have been in hospital 5 times with one thing or another: feet and hands, E-coli (again) and episodes of vomiting and retching, which last for hours on end, and does not stop until I'm given a jab to stop the sickness and put on a drip, because I get so dehydrated . The doctors have found nothing, and I'm now waiting to have an endoscopy on the 12th, but suspect that like with all the other tests nothing will be found. Maybe I should be pleased if nothing is found again, but I know it is real and not something in my head! One of my enlightened carers said she had experienced exactly the same thing when she was going through the menopause, and was wondering if anyone else has experienced something similar? I am 50 and have infrequent periods, which are very heavy when I do get them.
I have had my good days when I'm able to move around quite well and when I am not in too much pain, but as I am not on any meds it doesn't last for long. I have been advised to go back on Enbrel later this month, but I am worried and wondering with my previous experience with drugs whether I should? My consultant said the Enbrel will also treat my pustular psoriasis, and dodgy liver, and given my previous experiences with medication, I now find myself in a bit of a dilemma.
Much love to you all and sorry for not being around,
Barbara
XXXXXX Hi Barbara i read this again and thought if it was me .I would give Enbrel a other go .But would ask for extra checks .And while brother can think for him self maybe he should deal with his own care not expecting Mum to do it .Then think of only nice things you can do when well to spur you on .Tiny hobby to take mind off .love Chris The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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aww thanks barbara feel im coming out other end now of rough bits bobs,oh yes africa we gooing 3 weeks so long awaited 10 years anniersay this summer. nasty sickness barbara pray that stops soon not nice you must be feeling so wiped out. dont hesitate call gp. take care. lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
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Hi Barbara
I am really sorry to hear all the stuff you have been going through. I havent been on the site much while I was going through a busy pactch. I suppose we all come and go at some point but it doesnt take away from our contributions or relatioships made. ON this point I have to say I always look out for your posts as you do give good support and advice and posts make interesting reading. So I was trying to keep up on how you were doing during your recent hospital stays.
On the vomiting. I found that when my liver was out of sorts I felt quite sick to the point but never vomiting. I think it was my system being overwhlemed by the meds and the toxins werent been cleared out by the liver and kidneys. Recently I got completely overwhelmed and stressed out by my situation that i did feel sick and did actually vomit. I am aware that my stress levels can go into overdrive and thinking ulcer. But it was a one off. You mentioned ecoli perhaps your stomach has not fully recovered from this. I havent gone through the menopause but have neverheard of anyone vomiting because of it. I am just thinking perhaps your system is overwhelmed by all this physical and physcological factors and its telling you enough.
Take care
Mari
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Thinking of you Barbara. Sending lots of love,
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 312
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Dear Barbara, I just caught up with your posts. I am so sorry that you have beeen going through so much illness lately and hope that things will hurry up and get beter again soon! I look out for your posts and enjoy reading them so I am pleased you are posting again! Thinking of you. Best wishes, Fiona 
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hi Barbara hopw are you and sickness any relief yet alison ask to say she doign fine on humira now,and busy life with a 2 year old.sends her love doesnt get alot time to post. im alot brighter just silly old RA showing its self im attempting kncok that on head with extra troops support. take care hun.lupus is alot calmer which is brill,fibro on/off.even got volutray job now as moderator on a lupie sute great fun part time still doing my maths course slowly but surely. yes ahd 3 month set back double infection but thats seems gone thankfully ha ha. oh yes south africa is booked flights etc 3 weeks,going to a wildlife lodge etc,staying with hubby family carnt wait. lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 1,035
Location: in a house
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how are you now ????? The chocolate eating housewife ...The washer woman .....naughty lady
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Chrissie thank you, still going through the same thing - everyday I'm sick, feel weak and totally washed out. Don't know what to do, and can only wait until I have the endoscopy to see if it reveals anything. I've stopped calling out the doctors as I find they only want to send me back into hospital, and I've had enough of being an inpatient. As long as I keep myself hydrated and keep drinking the old dioralyte, I prefer to manage at home with the assistance of carers. At the rate I'm losing weight, who knows I might end up having a figure like Kate Moss - "fat chance!!! ." much love, Barbara XXXXX
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Still thinking of you, Barbara, and hoping things will improve for you. Take care, Kathleen x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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oh barbara, so sorry you are still being so sick. I had an endoscopy and they found a great stomach ulcer and I am loads better from that being treated. Are you back on the Enbrel again? I do miss you, but I havent been up to coming on the forum much myself with everything going on here. Much love Jenni xx how to be a velvet bulldoser
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